Wow! It’s been 6 months since our last post. Thankfully, that means that we have been busy living normal (well, our normal!) life, which has been great! Ezra has been doing remarkably well. He is grown and changed SO much during these past 6 months. He is super smart, very stubborn (gets it from his… Continue reading The Past 6 Months…

We made it through the year!!! Thinking back to the day that we first arrived at Duke, this point in time wasn’t even on our radar. We were just fixated on getting our some the best chance at life that we could give him. And now, here we are! Ezra completed his one year post-transplant… Continue reading One Year Post-Transplant!

Well, summer is almost over and we have loved every minute of it with our little guy! We are SO looking forward to spending the fall and winter holidays with him here at home. I was almost tempted to buy a “My First Thanksgiving” onesie the other day, since it will be his first Halloween,… Continue reading Goodbye Summer…

Hello everyone! Our little man is now 8 months old and doing great! Last month, we traveled back to North Carolina for a week for him to complete his 6 month post-transplant checkup at Duke. He went through all of the tests that he had initially at Duke and right before we left to come… Continue reading Ezra’s 6 Month Post-Transplant Update!

Hi everyone! Things have been CRAZY busy since arriving back home in Missouri. We have been home for almost a month now and we are starting to settle into our “new normal”. Ezra did great on the two day drive back home, he slept essentially the whole way! He is such a champ and is… Continue reading Life at HOME!

Hello from NC! All has been going well here with Ezra. We continue to go to clinic twice a week and he has been weaned off many of his medications. He is eating more, smiling, rolling, standing with support, laughing and cooing all the time. We are truly enjoying this stage and he is keeping… Continue reading Ezra Update: Test Results!

Hello everyone! We have been quite busy around here. On Friday Ezra was 100 days post transplant! This is a big milestone. We have truly enjoyed being out of the hospital and able to function together as a family and to have some privacy back. Ezra also seems much happier to be out as well… Continue reading Ezra is 100 Days Post-Transplant!

Hi Everyone! This update is super exciting because as of Monday, Ezra is officially outpatient! After over 3 months in the hospital, I think it’s safe to say that all 3 of us are very excited about this next step and Ezra’s progress. We are so grateful to the amazing staff of nurses on 5200… Continue reading Ezra is Officially Outpatient!!!

Happy 2017 everyone! We hope everyone enjoyed the holidays. Ezra is doing well, but had a couple of minor setbacks that have prevented us from being discharged to outpatient treatment. He had been having trouble tolerating his feedings, as well as some trouble coming off of his pain medication. They were able to get the… Continue reading Happy New Year!

Hi everyone! This update will be short and sweet, as not much has changed. Ezra is still doing very well and continues to improve each day. Right now, his skin is peeling from one of the chemo medications. They call it a “chemo tan” because it darkens the skin, then it peels off and returns… Continue reading Still Going Strong…