Transplant Day!

Today was transplant day! It definitely feels good to have that behind us. Although it sounds scary, the transplant itself was actually pretty uneventful. It was essentially the same process as a blood transfusion and lasted about 30 minutes due to the small volume of stem cells that our little guy required. He also slept through the ENTIRE thing like a champ. He actually was contently awake and interactive most of the day afterwards. Now we play the waiting game. It will take several weeks for the new stem cells to engraft. During that time, Ezra’s immune system will basically be zero until his new cells take over. The doctors say he won’t have a fully functioning immune system until about a year after transplant, but it should be good enough to resume normal activity in about 6-8 months.

During the next couple of months, Ezra will remain in the hospital as we wait for his new cells to take hold and while the doctors are monitoring him. During this time, this is when he is guaranteed to get pretty sick. The effects of the chemotherapy will start rearing their ugly head in the next couple of days (nausea, sores, possible infection, fever, etc). He will receive medicine for any discomfort, but we know this will be extremely hard to watch our innocent baby boy go through. In the coming weeks when his cells start to engraft, he will also start to get sick with flu like symptoms. This is a sign that his body and the cells are working together, so it is something that the doctor want to see, however that will also be a tough pill to swallow. He is also on a TON of medications to prevent his body from rejecting the new cells, as well as things to prevent issues such as seizures, nausea, high blood pressure, infections, allergic reactions, etc.

Overall he has been doing pretty good, but still has a long (and likely painful) road to recovery ahead of him.  We are so grateful that we were able to receive the transplant so quickly and blessed once again that the disease was caught early on. We ask for your continued prayers for Ezra, as this will be a difficult part in the process. He is definitely a strong little guy and we are confident that God is wrapped around him.

-R&K

Wide awake and ready to crush the transplant!
Wide awake and ready to crush the transplant!
Sleeping peacefully through transplant.
Sleeping peacefully through transplant.

17 thoughts on “Transplant Day!

  1. Praying! The Good Shepherd is cradling this precious little lamb in His arms and rebuilding this little body to be a strong and healthy temple for His Spirit to dwell. Praying for protection, healing, strength of will and physical strength, comfort, unity of body and new stem cells, miracles, wisdom, and God’s presence to dwell with you. Life!

    1. Thank you for the update. Praying throughout the day and night. Healing and comfort for Ezra; for Gods’ peace and strength to surround both of you and your families. With Love, Doug and Cathy Peth

    2. I am a friend of Laura’s.This is so beautifully written that I prayed her prayer over Ezra. It is so encouraging the Lord knit Ezra in your womb and he is fearfully and wonderfully made.Psalm 139.May the Lord grow your and Ryan’s faith in amazing ways as you see His hand carrying all of you each day.God bless you all.Dianne Wilcox

    3. My prayers will continue for baby Ezra and for all of you. This is a time where prayers should never cease. I believe and know in my heart that God will heal Ezra and one day he will be a great testimony to others. May God give you all strength and peace to continue through this process and just know that there is no other doctor greater in this world then our Lord Jesus. Ezra is a miracle child. God bless you all.

  2. Praying each day for your precious son and for you too. Praising Him each step of the way. Asking for His mercy and comfort over each of you. Jen Peskorse
    (Friend of your parents,Karlita )

  3. Sending love and prayers for your sweet baby, Ezra, and your family everyday. Praying for healing, strength, and comfort during this difficult time for all of you.

  4. God brings you to mind often, Karlita, including in the middle of the night last night. I figure that is always a reminder to pray for Ezra, so I do. It is our privilege to talk straight to the living God, our Heavenly Father, for that tiny boy. You’re right that God is wrapped around him! Psalm 91.

  5. I just heard about this. I’m so very sorry to hear your news and our family’s prayers are with you all. I am a Missouri State Representative and the grandmother of Brady Alan Cunningham who passed in 2009 from Krabbe. NBS in Missouri was expanded to include Krabbe because of him, and the law was named Brady’s Law. Tears have been running down my face as I have read your story. We couldn’t save Brady, but by God’s grace and mercy there is the chance to save your little Ezra! Please let me know if there is anything at all that I or my family can do to help you and your family as you go through this journey. May God’s hands continue to be on your sweet baby and with all of his doctors at Duke! My phone number is 314-288-6995 if you would like to talk at any time, or email me at bruth0014@gmail.com or becky.ruth@house.mo.gov

  6. Karlita, this is your cousin, Beth. Praying for your sweet baby, and mom & dad too. My husband had a stem cell transplant on July 25, 2014. He has Lymphoma. A parent should not have to go through this.

  7. Praying that God will touch your baby with his Healing Hand God bless you and your family as you go through this it will be hard but God will give you the strength that you need as you need it God bless

  8. Praying that God will touch your baby with his Healing Hand God bless you and your family as you go through this it will be hard but God will give you the strength that you need as you need it God bless

  9. Praying that God will touch your baby with his Healing Hands God bless you and your family as you go through this it will be hard but God will give you the strength as you need it God bless

  10. I PRAY OUR LORD WILL WRAP HIS LOVING ARMS AROUND LITTLE EZRA TAKE CARE OF HIM LORD. LET EVERY PART OF HIS BODY EXCEPT THE TRANSPLANT. LET HIM LIVE AND GROW UP TO BE A POWERFUL WARRIOR OF YOURS FATHER . HELP HIS PARENTS FATHER STRENGTHEN THEM GIVE THEM EVERYTHING THEY NEED IN JESUS PRECIOUS NAME AMEN AND AMEN❤️

  11. I work with Liz at The Oaks Academy in Indianapolis. The first grade team here is praying for your family. May the Lord completely heal Ezra through this journey and tangibly show you His love, peace and care and you walk through this difficult time.

  12. I am praying for your precious boy! May God work through the doctors & nurses & all medical staff to completely heal little Ezra. May Christ give you his peace which surpasses understanding! In Jesus’ Name, Amen.

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