Today was transplant day! It definitely feels good to have that behind us. Although it sounds scary, the transplant itself was actually pretty uneventful. It was essentially the same process as a blood transfusion and lasted about 30 minutes due to the small volume of stem cells that our little guy required. He also slept through the ENTIRE thing like a champ. He actually was contently awake and interactive most of the day afterwards. Now we play the waiting game. It will take several weeks for the new stem cells to engraft. During that time, Ezra’s immune system will basically be zero until his new cells take over. The doctors say he won’t have a fully functioning immune system until about a year after transplant, but it should be good enough to resume normal activity in about 6-8 months.
During the next couple of months, Ezra will remain in the hospital as we wait for his new cells to take hold and while the doctors are monitoring him. During this time, this is when he is guaranteed to get pretty sick. The effects of the chemotherapy will start rearing their ugly head in the next couple of days (nausea, sores, possible infection, fever, etc). He will receive medicine for any discomfort, but we know this will be extremely hard to watch our innocent baby boy go through. In the coming weeks when his cells start to engraft, he will also start to get sick with flu like symptoms. This is a sign that his body and the cells are working together, so it is something that the doctor want to see, however that will also be a tough pill to swallow. He is also on a TON of medications to prevent his body from rejecting the new cells, as well as things to prevent issues such as seizures, nausea, high blood pressure, infections, allergic reactions, etc.
Overall he has been doing pretty good, but still has a long (and likely painful) road to recovery ahead of him. We are so grateful that we were able to receive the transplant so quickly and blessed once again that the disease was caught early on. We ask for your continued prayers for Ezra, as this will be a difficult part in the process. He is definitely a strong little guy and we are confident that God is wrapped around him.